Ethan
Age 5
Phoenix Children's Hospital
Rare Kidney Disease
A 6-month-old infant with a 105-degree fever sends any parent into a panic. Simply seeking help with their son’s fever, Ethan’s parents were quickly met with bigger news. Their son had congenital nephrotic syndrome, a rare form of kidney disease that disrupts the immune system.
Now 5 years old, Ethan has had both of his kidneys removed, and currently carries a kidney donated from his loving grandma. Between the countless surgeries and having to receive peritoneal dialysis several times a week, Ethan’s relatives have come to accept the staff at Phoenix Children’s Hospital as family.
Like many boys, Ethan loves dogs and watching his favorite movies like “The Emperor’s New Groove.” He also enjoys lending a hand at hospital fundraisers so other kids can receive help. Most of all, Ethan loves to tell people about his caring family. He regularly points to his belly and exclaims, “My grandma’s kidney is right here!”
Wednesday, April 25, 2012
Children's Miracle Network Hospitals Champions
Champions is a Children's Miracle Network
Hospitals program that brings attention to the important work being done at its
170 children’s hospitals. It does this by honoring 54 remarkable kids who have
faced severe medical challenges, and helping them tell their stories.
The Champions program designates a child in every state who has bravely battled a serious injury or illness. The Champions represent the 17 million children treated at Children’s Miracle Network Hospitals every year. The 2012 Champions have dealt with a wide variety of injuries and illnesses including genetic diseases, organ transplants and traumas, as well as various types of cancer.
The Champions travel for a week in September, first to Washington, D.C., where they traditionally meet with their state representatives on Capitol Hill and visit the White House. They then take a private chartered flight, provided by Delta Air Lines, to Orlando, Fla. While there, Champions meet Children’s Miracle Network Hospitals corporate partners, hospital representatives and media partners. These groups convene to celebrate a year of medical miracles during the Children’s Miracle Network Hospitals Celebration event at Walt Disney World Resort.
The Champions program designates a child in every state who has bravely battled a serious injury or illness. The Champions represent the 17 million children treated at Children’s Miracle Network Hospitals every year. The 2012 Champions have dealt with a wide variety of injuries and illnesses including genetic diseases, organ transplants and traumas, as well as various types of cancer.
The Champions travel for a week in September, first to Washington, D.C., where they traditionally meet with their state representatives on Capitol Hill and visit the White House. They then take a private chartered flight, provided by Delta Air Lines, to Orlando, Fla. While there, Champions meet Children’s Miracle Network Hospitals corporate partners, hospital representatives and media partners. These groups convene to celebrate a year of medical miracles during the Children’s Miracle Network Hospitals Celebration event at Walt Disney World Resort.
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